Disability History Timeline

 

The following is a select list of national and international milestones highlighting people, events and legislation that effect disability rights.

 

1817

The American School for the Deaf is founded in Hartford, Connecticut. This is the first school for disabled children anywhere in the Western Hemisphere.

 

1848

The Perkins Institution, founded by Samuel Gridley Howe in Boston, Massachusetts, was the first residential institution for people with mental retardation. Over the next century, hundreds of thousands of developmentally disabled children and adults were institutionalized, many for the rest of their lives.

 

1864

Columbia Institution for the Deaf and Dumb and Blind was authorized by the U.S. Congress to grant college degrees. It was the first college in the world established for people with disabilities.

 

1859

Charles Darwin publishes his controversial book The Origin of the Species.

 

1865

P.T. Barnum’s American Museum on Broadway is destroyed by a mysterious fire.

 

1883

Eugenics is a term that was coined by Sir Francis Galton in his book Essays in Eugenics. Americans embraced the eugenics movement by passing laws to prevent people with disabilities from moving to the U.S., marrying or having children. Eugenics laws led to the institutionalization and forced sterilization of disabled adults and children.

 

1912

The Kallikak Family by Henry H. Goddard was a best selling book. It proposed that disability was linked to immorality and alleged that both were tied to genetics.  It advanced the agenda of the eugenics movement.

 

The Threat of the Feeble Minded (pamphlet) created a climate of hysteria allowing for massive human rights abuses of people with disabilities, including institutionalization and forced sterilization.

 

1918

The Smith-Sears Veterans Rehabilitation Act provided for the promotion of vocational rehabilitation and return to civil employment of disabled persons discharged from U.S. military.

 

1924

The Commonwealth of Virginia passed a state law that allowed for sterilization (without consent) of individuals found to be “feebleminded, insane, depressed, mentally handicapped, epileptic and other.” Alcoholics, criminals and drug addicts were also sterilized.

 

1927

The Buck v. Bell Supreme Court decision ruled that forced sterilization of people with disabilities was not a violation of their constitutional rights. This decision removed all restraints for eugenicists. By the 1970s, over 60,000 disabled people were sterilized without their consent.

 

The U.S. Supreme Court upheld Commonwealth of Virginia eugenic laws as constitutional. Justice Oliver Wendell Holmes equated sterilization to vaccination. Nationally, twenty-seven states began wholesale sterilization of “undesirables.”

 

1932

In order to take advantage of the popularity of Tod Browning’s previous film Dracula the production head for MGM commissioned a new project, to be “even more horrible.”  Freaks was released to near universal criticism.  It received so much bad press and created such ill will that MGM was forced to withdraw it from circulation, suffering a loss of $164,000.

 

1935

The League for the Physically Handicapped in New York City was formed to protest discrimination by the Works Progress Administration (WPA). The Home Relief Bureau of New York City stamped all applications with “PH” which stood for physically handicapped. Members of the League held a sit-in at the Home Relief Bureau for nine days and a weekend sit-in at the WPA headquarters. These actions eventually led to the creation of 1500 jobs in New York City.

 

The Social Security Act was passed. This established federally funded old-age benefits and funds to states for assistance to blind individuals and disabled children. The Act extended existing vocational rehabilitation programs.

 

1939

World War II began. Hitler ordered widespread mercy killing of the sick and disabled. The Nazi euthanasia program (code name Aktion T-4) was instituted to eliminate “life unworthy of life.”

 

1940-44

908 patients were transferred from an institution for retarded and chronically ill patients in Schoenbrunn, Germany to the euthanasia installation at Eglfing-Haar to be gassed. A monument to the victims stands in the courtyard at Schoenbrunn.

 

1940

The National Federation of the Blind was formed in Wilkes-Barre, Pennsylvania by Jacobus Broek and others. They advocated for white cane laws, input by blind people for programs for blind clients and other reforms.

 

The American Federation of the Physically Handicapped, founded by Paul Strachan, was the first cross-disability national political organization to urge an end to job discrimination, lobby for passage of legislation, call for a National Employ the Physically Handicapped Week and other initiatives.

 

1941

Hitler suspended the Aktion T4 program that killed nearly one hundred thousand people. Euthanasia continued through the use of drugs and starvation instead of gassings.

 

1942

Henry Viscardi, an American Red Cross volunteer, trained hundreds of disabled soldiers to use their prosthetic limbs. His work at Walter Reed Army Medical Center in Washington, D.C. drew the attention of Howard Rusk and Eleanor Roosevelt, who protested when Viscardi’s program was terminated by the Red Cross and the military.

 

1943

The LaFollette-Barden Vocational Rehabilitation Act added physical rehabilitation to the goals of federally funded vocational rehabilitation programs and provided funding for certain health care services.

 

1944

Howard Rusk began a rehabilitation program for disabled airmen at the U.S. Army Air Force Convalescent Center in Pawling, New York. Dubbed “Rusk’s Folly” by the medical establishment, rehabilitation medicine became a new medical specialty.

 

1945

President Harry Truman signed PL-176 creating an annual National Employ the Handicapped Week.

 

1946

The Hill-Burton Act (also known as the Hospital Survey and Construction Act) authorized federal grants to states for the construction of hospitals, public health centers and health facilities for rehabilitation of people with disabilities.

 

The National Mental Health Foundation was founded by World War II conscientious objectors who served as attendants at state mental institutions rather than in the war. The Foundation exposed the abusive conditions at these facilities and became an impetus toward deinstitutionalization.

 

1947

The President’s Committee on National Employ the Physically Handicapped Week was held in Washington, D.C.  Publicity campaigns, coordinated by state and local committees, emphasized the competence of people with disabilities and used movie trailers, billboards, radio and television ads to convince the public that it was good business to hire the handicapped.

 

The Paralyzed Veterans of America was organized.

 

1948

The National Paraplegia Foundation, founded by members of the Paralyzed Veterans of America as the civilian arm of their growing movement, took a leading role in advocating for disability rights.

 

University of Illinois at Galesburg disabled students’ program was officially founded and directed by Timothy Nugent. The program moved to the campus at Urbana-Champaign where it became a prototype for disabled student programs and independent living centers across the country.

 

We Are Not Alone (WANA), a mental patients’ self-help group, was organized at the Rockland State Hospital in New York City.

 

-----------------------1950’s through 1960’s------------------------

U.S. Civil Rights Movement

Self-Help Movement

Deinstitutionalization Movement

Demedicalization Movement

Consumerism Movement

 

1950

Mary Switzer was appointed the Director of the U.S. Office of Vocational Rehabilitation where she emphasized independent living as a quality of life issue.

 

Social Security Amendments established a federal-state program to aid permanently and totally disabled persons.

 

1951

Howard Rusk opened the Institute of Rehabilitation Medicine at the New York University Medical Center in New York City.

 

1952

The President’s Committee on National Employ the Physically Handicapped Week became the President’s Committee on Employment of the Physically Handicapped, a permanent organization reporting to the President and Congress.

 

1953

Los Angeles County provided at-home attendant care to adults with polio as a cost-saving alternative to hospitalization.

 

1954

The U.S. Supreme Court in Brown v. Board of Education of Topeka ruled that separate schools for black and white children are unequal and unconstitutional. This pivotal decision became a catalyst for the Civil Rights Movement.

 

Vocational Rehabilitation Amendments were passed that authorized federal grants to expand programs available to people with physical disabilities.

 

Mary Switzer, Director of the U.S. Office of Vocational Rehabilitation, authorized funds for more than 100 university-based rehabilitation-related programs.

 

Social Security Act of 1935 was amended by PL 83-761 to include a freeze provision for workers who were forced by disability to leave the workforce. This protected their benefits by freezing their retirement benefits at their pre-disability level.

 

1956

Social Security Amendments of 1956 created the Social Security Disability Insurance (SSDI) program for disabled workers aged 50 to 64.

 

1958

Social Security Amendments of 1958 extended Social Security Disability Insurance benefits to dependents of disabled workers.

           

Rehabilitation Gazette (formerly known as the Toomeyville Gazette), edited by Gini Laurie, was a grassroots publication which became an early voice for disability rights, independent living and cross-disability organizing. It featured articles by writers with disabilities.  

 

1960

 Social Security Amendments of 1960 eliminated the restriction that disabled workers receiving Social Security Disability Insurance benefits must be 50 or older.

 

1961

President Kennedy appointed a special President’s Panel on Mental Retardation.

 

The American National Standard Institute, Inc. (ANSI) published American Standard Specifications for Making Buildings Accessible to, and Usable by, the Physically Handicapped.  This landmark document became the basis for subsequent architectural access codes.

 

1962

The President’s Committee on Employment of the Physically Handicapped was renamed the President’s Committee on Employment of the Handicapped reflecting increased interest in employment issues affecting people with cognitive disabilities and mental illness.

 

Edward Roberts sued to gain admission to the University of California. (James Meredith sued to become the first black person to attend the University of Mississippi.)

 

1963

President Kennedy called for a reduction “over a number of years and by hundreds of thousands, (in the number) of persons confined” to residential institutions and asks that methods be found “to retain in and return to the community the mentally ill and mentally retarded, and thereto restore and revitalize their lives through better health programs and strengthened educational and rehabilitation services.”  This resulted in deinstitutionalization and increased community services.

 

The Mental Retardation Facilities and Community Health Centers Construction Act authorized federal grants for the construction of public and private nonprofit community mental health centers.

 

South Carolina passed the first statewide architectural access code.

 

1964

The Civil Rights Act, signed by President Johnson, prohibited discrimination on the basis of race, religion, ethnicity, national origin and creed (gender was added later). This Act outlawed discrimination on the basis of race in public accommodations and employment as well as in federally assisted programs. 

 

1965

Medicare and Medicaid were established through passage of the Social Security Amendments of 1965, providing federally subsidized health care to disabled and elderly Americans covered by the Social Security program. These amendments changed the definition of disability under Social Security Disability Insurance program from “of long continued and indefinite duration” to “expected to last for not less than 12 months.”

 

Vocational Rehabilitation Amendments of 1965 were passed authorizing federal funds for construction of rehabilitation centers, expansion of existing vocational rehabilitation programs and the creation of the National Commission on Architectural Barriers to Rehabilitation of the Handicapped.

 

The National Technical Institute for the Deaf at the Rochester Institute of Technology in Rochester, New York was established by Congress.

 

1966

The President’s Committee on Mental Retardation was established by President Johnson.

 

Christmas in Purgatory by Burton Blatt and Fred Kaplan documented conditions at state institutions for people with developmental disabilities.

 

1968

The Architectural Barriers Act prohibited architectural barriers in all federally owned or leased buildings.

 

California legislature guaranteed that the Bay Area Rapid Transit (BART) would be the first rapid transit system in the U.S. to accommodate wheelchair users.

 

1970

The Urban Mass Transit Act required all new mass transit vehicles be equipped with wheelchair lifts. APTA delayed implementation for 20 years. Regulations were issued in 1990.

 

The Rolling Quads was started by Ed Roberts at U C Berkeley.

 

Disabled in Action was a group started by Judy Heumann at Long Island University, New York.

 

Developmental Disabilities Services and Facilities Construction Amendments were passed which contained the first legal definition of developmental disabilities. They authorized grants for services and facilities for the rehabilitation of people with developmental disabilities and state DD Councils.

 

The Physically Disabled Students Program (PDSP) was founded by Ed Roberts, John Hessler, Hale Zukas and others at UC Berkeley. With its focus on community living, political advocacy and personal assistance services, it became the nucleus for the first Center for Independent Living, founded in 1972.

 

1971

The National Center for Law and the Handicapped was founded at the University of Notre Dame, Indiana. It became the first legal advocacy center for people with disabilities in the U. S.

 

The U.S. District Court, Middle District of Alabama decided in Wyatt v. Stickney that people in residential state schools and institutions have a constitutional right “to receive such individual treatment as (would) give them a realistic opportunity to be cured or to improve his or her mental condition.”  Disabled people were no longer to be locked away in custodial institutions without treatment or education.

 

The Mental Patients’ Liberation Project was initiated in New York City.

 

The Fair Labor Standard Act of 1938 was amended to bring people with disabilities (other than blindness) into the sheltered workshop system. 

 

1972

The Berkeley Center for Independent Living was founded by Ed Roberts and associates with funds from the Rehabilitation Administration. It is recognized as the first center for independent living.

 

The Rehabilitation Act was passed by Congress and vetoed by Richard Nixon.

 

The U.S. District Court, District of Columbia ruled in Mills v. Board of Education that the District of Columbia could not exclude disabled children from the public schools.

 

The U.S. District Court, Eastern District of Pennsylvania, in PARC v. Pennsylvania struck down various state laws used to exclude disabled children from the public schools. Advocates cited these decisions during public hearings that led to the passage of the Education for All Handicapped Children Act of 1975.   

 

Social Security Amendments of 1972 created the Supplemental Security Income (SSI) program.  The law relieved families of the financial responsibility of caring for their adult disabled children. 

 

The Houston Cooperative Living Residential Project was established in Houston, Texas. It became a model for subsequent independent living programs.

 

The Judge David L. Bazelon Center for Mental Health Law, founded in Washington, D.C. provided legal representation and advocated for the rights of people with mental illness.

 

The Legal Action Center (Washington, D.C. and New York City) was founded to advocate for the interests of people with alcohol or drug dependencies and for people with HIV/AIDS.

 

Paralyzed Veterans of America, National Paraplegia Foundation and Richard Heddinger file suit against the Washington Metropolitan Area Transit Authority to incorporate accessibility into their design for a new, multibillion-dollar subway system in Washington, D.C.  Their victory was a landmark in the struggle for accessible public mass transit.

 

The Network Against Psychiatric Assault was organized in San Francisco. 

 

In New York ARC v. Rockefeller, parents of residents at the Willow Brook State School in Staten Island, New York filed suit to end the appalling conditions at that institution. A television broadcast from the facility outraged the general public. Eventually, thousands of people were moved into community-based living.

 

Disabled in Action demonstrated in New York City, protesting Nixon’s veto of the Rehabilitation Act. Led by Judy Heumann, eighty activists staged a sit-in on Madison Avenue, stopping traffic. A flood of letters and protest calls were made.

 

Demonstrations were held by disabled activists in Washington, D.C. to protest Nixon’s veto of the Rehabilitation Act. Among the demonstrators are Disabled in Action, Paralyzed Veterans of America, the National Paraplegia Foundation and others. 

 

The Commonwealth of Virginia ceased its sterilization program. 8300 individuals never received justice regarding their sterilizations. 

 

1973

The Rehabilitation Act of 1973 was passed. Sections 501, 503 and 504 prohibited discrimination in federal programs and services and all other programs or services receiving federal funds. Key language in the Rehabilitation Act, found in Section 504, states “No otherwise qualified handicapped individual in the United States, shall, solely by reason of his handicap, be excluded from the participation in, be denied the benefits of, or be subjected to discrimination under any program or activity receiving federal financial assistance.”

 

Handicap parking stickers were introduced in Washington, D.C.

 

The first Conference on Human Rights and Psychiatric Oppression was held at the University of Detroit.

 

The Federal-Aid Highway Act authorized federal funds for construction of curb cuts.

 

The Architectural and Transportation Barriers Compliance Board established under the Rehabilitation Act of 1973 enforced the Architectural Barriers Act of 1968.

 

The Consortium for Citizens with Disabilities advocated for passage of what became the Developmentally Disabled Assistance and Bill of Rights Act of 1975 and the Education for All Handicapped Children Act of 1975.

 

1974

The Disabled Women's Coalition was founded at the University of California, Berkeley by Susan Sygall, Deborah Kaplan, Kitty Cone, Corbett O'Toole and Susan Shapiro.

 

Atlantis Community, Denver, Colorado was founded by Wade Blank who relocated adults with severe disabilities from nursing homes to apartments.

           

The Boston Center for Independent Living was established.

 

Halderman v. Pennhurst, filed in Pennsylvania on behalf of the residents of the Pennhurst State School and Hospital highlighted conditions at state schools for people with mental retardation. It became a precedent in the battle for deinstitutionalization, establishing a right to community services for people with developmental disabilities.

 

The first Client Assistant Project (CAP) was established to advocate for clients of state vocational rehabilitation agencies.

 

North Carolina passed a statewide building code with stringent access requirements. Drafted by access advocate Ronald Mace, the code became a model for effective architectural access legislation in other states. 

 

Barrier Free Environments, founded by Ronald Mace, advocated for accessibility in buildings and products.

 

1975

The Education of All Handicapped Children Act (PL 94-142) required free, appropriate public education in the least restrictive setting. This Act was later renamed The Individuals With Disabilities Education Act (IDEA).

 

The Developmental Disability Bill of Rights Act established protection and advocacy (P & A) services.

 

The Community Services Act created the Head Start Program. It stipulated that at least 10% of program openings were to be reserved for disabled children. 

 

The Developmentally Disabled Assistance and Bill of Rights Act provided federal funds to programs serving people with developmental disabilities and outlined a series of rights for those who are institutionalized. 

 

The American Coalition of Citizens with Disabilities was founded.  It became the leading national cross-disability rights organization of the 1970s.

 

The Association of Persons with Severe Handicaps (TASH) was founded by special education professionals in response to PARC v. Pennsylvania (1972) and other right-to-education cases. This organization called for the end of aversive behavior modification and the closing of all residential institutions for people with disabilities.

 

U.S. Supreme Court ruled in O’Connor v. Donaldson that people cannot be institutionalized in a psychiatric hospital against their will unless they are determined to be a threat to themselves or to others.

 

Parent and Training Information Centers were developed to help parents of disabled children exercise their rights under the Education for All Handicapped Children Act of 1975.

 

Ed Roberts was appointed Director of the California Department of Rehabilitation. He established nine independent living centers based on the Berkeley CIL model.

 

The Western Center on Law and the Handicapped was founded in Los Angeles.

 

1976

Centers for independent living are established in Houston and Chicago.

 

The Federal Communications Commission authorized reserving Line 21 on televisions for closed captions.

1976 (cont’)

Higher Education Act of 1972 amendment provided services to physically disabled students entering college.

 

Disabled in Action of Pennsylvania, Inc. v. Coleman was known as the Transbus lawsuit. Disabled in Action of Pennsylvania, the American Coalition of Cerebral Palsy Associations and others were represented by the Public Interest Law Center of Philadelphia. They filed suit to require that all buses purchased by public transit authorities receiving federal funds meet Transbus specifications (making them wheelchair accessible).

 

Disabled in Action, New York City picketed the United Cerebral Palsy telethon calling telethons “demeaning and paternalistic shows which celebrate and encourage pity.”

 

The Disability Rights Center was founded in Washington, D.C. Sponsored by Ralph Nader’s Center for the Study of Responsive Law, it specialized in consumer protection for people with disabilities.

 

The Westside Center for Independent Living, Los Angeles was one of the first nine independent living centers established by Ed Roberts, Director of the California Department of Rehabilitation.

 

1977

Joseph Califano, U.S. Secretary of Health, Education and Welfare, refused to sign meaningful regulations for Section 504. After an ultimatum and deadline, demonstrations took place in ten U.S. cities on April 5th. The sit-in at the San Francisco Office of the U.S. Department of Health, Education and Welfare lasted until May 1st. More than 150 demonstrators refused to disband. This action became the longest sit-in at a federal building to date.

 

Section 504 regulations were issued.

           

Max Cleland was appointed head of the U.S. Veterans Administration. He was the first severely disabled and youngest person to fill that position.

 

The White House Conference on Handicapped Individuals drew 3,000 disabled people to discuss federal policy toward people with disabilities. It resulted in numerous recommendations and acted as a catalyst for grassroots disability rights organizing.

 

Legal Services Corporation Act Amendments added financially needy people with disabilities to the list of those eligible for publicly funded legal services.

 

In Lloyd v. Regional Transportation Authority, the U.S. Court of Appeals, Seventh Circuit ruled that individuals have a right to sue under Section 504 of the Rehabilitation Act of 1973 and that public transit authorities must provide accessible service.

 

The U.S. Court of Appeals, Fifth Circuit, in Snowden v. Birmingham Jefferson County Transit Authority undermined this decision by ruling that authorities need to provide access only to “handicapped persons other than those confined to wheelchairs.”

 

1978

American Disabled for Public Transit (ADAPT) was founded. It held a transit bus hostage in Denver, Colorado. A yearlong civil disobedience campaign followed to force the Denver Transit Authority to purchase wheelchair lift-equipped buses.

 

The Adaptive Environments Center was founded in Boston.

 

Title VII of the Rehabilitation Act Amendments of 1978 established the first federal funding for consumer-controlled independent living centers and created the National Council of the Handicapped under the U.S. Department of Education.

 

On Our Own: Patient Controlled Alternatives to the Mental Health System by Judi Chamberlin became the standard text of the psychiatric survivor movement.

 

The National Center for Law and the Deaf was founded in Washington, D.C.

 

Handicapping America by Frank Bowe was a comprehensive review of the policies and attitudes denying equal citizenship to people with disabilities. It became a standard text of the general disability rights movement.

 

1979

Part B funds created ten new centers for independent living across the U.S.

 

Vermont Center for Independent Living, the first statewide independent living center in the U.S., was founded by representatives of Vermont disability groups.

 

In Southeastern Community College v. Davis, the Supreme Court ruled that under Section 504 of the Rehabilitation Act of 1973, programs receiving federal funds must make “reasonable modifications” to enable the participation of otherwise qualified disabled individuals. This decision was the Court’s first ruling on Section 504 establishing reasonable modification as an important principle in disability rights law.

 

The Disability Rights Education and Defense Fund (DREDF), founded in Berkeley, California, became the nation’s leading disability rights legal advocacy center. It participated in landmark litigation and lobbying of the 1980s and 1990s.

 

1980 

The National Disabled Women's Educational Equity Project, Berkeley, California, was established by Corbett O'Toole. Based at DREDF, the Project administered the first national survey on disability and gender and conducted the first national Conference on Disabled Women's Educational Equity held in Bethesda, Maryland.

 

Social Security Amendments, Section 1619 was passed. Designed to address work disincentives within the Social Security Disability Insurance and Supplemental Security Income programs, other provisions mandated a review of Social Security recipients. This led to the termination of benefits of hundreds of thousands of people with disabilities.

 

The Civil Rights of Institutionalized Persons Act authorized the U.S. Justice Department to file civil suits on behalf of residents of institutions whose rights were being violated.

 

Disabled Peoples’ International was founded in Singapore with participation of advocates from Canada and the United States.

 

1981-1984

The Reagan Administration threatened to amend or revoke regulations implementing Section 504 of the Rehabilitation Act of 1973 and the Education for All Handicapped Children Act of 1975.  Disability rights advocates Patrisha Wright (DREDF) and Evan Kemp, Jr. (Disability Rights Center) led an intense lobbying and grassroots campaign that generated more than 40,000 cards and letters. After three years, the Reagan Administration abandoned its attempts to revoke or amend the regulations.

 

The Reagan Administration terminated the Social Security benefits of hundreds of thousands of disabled recipients. Distressed by this action, several disabled people committed suicide. A variety of groups including the Alliance of Social Security Disability Recipients and the Ad Hoc Committee on Social Security Disability fought these terminations.

 

1981

The International Year of Disabled Persons began. During the year, governments were encouraged to sponsor programs bringing people with disabilities into the mainstream of their societies.

 

The parents of “Baby Doe” in Bloomington, Indiana were advised by their doctors to decline surgery to unblock their newborn’s esophagus because the baby had Down's syndrome. Although disability rights activists tried to intervene, “Baby Doe” starved to death before legal action was taken. 

 

The Telecommunications for the Disabled Act mandated telephone access for deaf and hard-of-hearing people at public places like hospitals and police stations. All coin-operated telephones had to be hearing aid-compatible by January 1985. The Act called for state subsidies for production and distribution of TDD’s.

 

1983

The National Council on Independent Living (NCIL) was founded by Max Starkloff, Charlie Carr and Marca Bristo.

 

A national ADAPT action was held for accessible transportation in Denver, Colorado at the American Public Transit Association (APTA) Convention.

 

The World Institute on Disability (WID) was established by Ed Roberts, Judy Heumann and Joan Leon.

 

The Disabled Children’s Computer Group (DCCG) was founded in Berkeley, California.

 

The National Council on the Handicapped called for Congress to include persons with disabilities in the Civil Rights Act of 1964 and other civil and voting rights legislation and regulations.